After the many losses of this past week, it was a mercy and a blessing to go home after job #2 and lay me down to sleep. A good big sleep it was, awakening to a clearer mind and a refreshed spirit.
Some losses are easier than others. Some losses bring echoes of others. There was something so valiant in our warrior, something so fierce and strong that took such a battle to best, that to see it gone is difficult to process.
My slots will fill again with new faces and new spirits but there will never be another Mike.
Showing posts with label Mike. Show all posts
Showing posts with label Mike. Show all posts
11.1.09
10.1.09
End of the Road
All week long, the buzz has been around our tenacious warrior gentleman, who clearly was at the end of his life. No one wants to be the person who accidentally chokes him on water or rolls him and feels the final death spasm but someone has to be there. It was inevitable that one of us would be the last Health Care representative to attend to him and today was the day. My co-worker and I walked in to find him deceased. We did his last care as an act of closure and a nicety to the family and then we cleared as many of the medical reminders away as we could.
We said our goodbyes, telling his wife in respectful tones,how much we admired her for being so present and willing. Grace under pressure needs to be affirmed. We left the home, looked at each other and decided to go for coffee. I booked off my next client as I could feel my usefulness as around the zero mark. My coworker did the same. Do not think badly of us. We just needed to breathe.
For three years we have been going into that home to care for this man. At first we went to the upstairs bedroom. Next we used a lift for bathing but assisted him to stand and walk. A renovation moved him to the lower area where a hospital bed and an Angel overhead lift made transfers safe for all. Last summer the word came down the pike that the assisting to stand was off the books. He grumbled but acquiesed. His decline necessitated catheter and bowel care, and even this indignity he bore. His wheelchair was modified repeatedly to accomodate his growing needs. Pureed food came before syringe, and this last week, it was very little of anything. The constant throughout all this was his resilience and refusal to have things done any way but the way he wanted. He did not suffer fools but once he trusted, that trust was firm and unwavering.
To see another human being use their will so mightily is an awe inspiring thing. Very few of us possess the tenacity to wrestle Death to a draw. The trouble with a draw is that there is always a rematch, and Death being who he is, always wins.
There are no words for the things we see and do. There is no one other than another Palliative Care worker who understands the feelings that wash over us at such a time as this. We are happy that he has found his rest but we are sad that we bore witness to such incredible pain and suffering.
The reason that man stayed around this planet on this plain for so long is that he understood what is stronger than death. It is love. He had the love of a wonderful woman, bless her heart.
It will be a long time before I forget these two extraordinary people. I stand humbled.
We said our goodbyes, telling his wife in respectful tones,how much we admired her for being so present and willing. Grace under pressure needs to be affirmed. We left the home, looked at each other and decided to go for coffee. I booked off my next client as I could feel my usefulness as around the zero mark. My coworker did the same. Do not think badly of us. We just needed to breathe.
For three years we have been going into that home to care for this man. At first we went to the upstairs bedroom. Next we used a lift for bathing but assisted him to stand and walk. A renovation moved him to the lower area where a hospital bed and an Angel overhead lift made transfers safe for all. Last summer the word came down the pike that the assisting to stand was off the books. He grumbled but acquiesed. His decline necessitated catheter and bowel care, and even this indignity he bore. His wheelchair was modified repeatedly to accomodate his growing needs. Pureed food came before syringe, and this last week, it was very little of anything. The constant throughout all this was his resilience and refusal to have things done any way but the way he wanted. He did not suffer fools but once he trusted, that trust was firm and unwavering.
To see another human being use their will so mightily is an awe inspiring thing. Very few of us possess the tenacity to wrestle Death to a draw. The trouble with a draw is that there is always a rematch, and Death being who he is, always wins.
There are no words for the things we see and do. There is no one other than another Palliative Care worker who understands the feelings that wash over us at such a time as this. We are happy that he has found his rest but we are sad that we bore witness to such incredible pain and suffering.
The reason that man stayed around this planet on this plain for so long is that he understood what is stronger than death. It is love. He had the love of a wonderful woman, bless her heart.
It will be a long time before I forget these two extraordinary people. I stand humbled.
4.1.09
Palliative Care is not for some....
One of the difficulties within the structure of the Government HealthCare system, as it pertains to care in the home, is that it assumes every Doctor, Nurse, and HealthCare Worker can do palliative care at an acceptable level. This is a fallacy.
Although we all see some of it, and most of do some of it, not all of us enjoy it. There are also those who the client does not enjoy having. The things my clients tell me would put the curl in or take it out of almost anyone's hair. Some days, I hear about circumstances and comments of the unfortunate nature and some days I hear it first hand. Today was such.
In the home of our magnificantly fierce gentleman, he of the indomitable spirit, things are not going well. There are some nasty complications this far down the end of life road. His strong heart and will keep beating in a body that is literally rotting from the inside out and it is a source of amazement that he fights on for every breath. This week is truly the end. He has not taken food for 2 weeks, and his breathing is laboured. He is gasping for air. He is choking on water which we administer with a syringe. He expresses himself in grunts and makes eye contact to show distain or amusement. He and I get along well. I try not to ask too many questions and keep my chatter lite.
My philosophy of care remains unchanged: do the job well, be mindful of the client's individual, maintain client dignity and then get the hell out of the way.
Each day as I enter this home over the holidays, a different co-workers face greets me. As he is a two person assignment, it is essential that at least one of the two is both trained and familiar with the client. I am that one. Today the other is a pleasant well-intentioned woman who has high skills. We rarely work together. She enters the bedroom, greets our client, bends down over the man in the bed and announces:
"Oh my GAWD- your eyes look awful. You look like you are going blind."
---then---:
"Happy New Year. Well, I guess it isn't a very happy one for you eh."
and so on.
My experience dealing with people who are inappropriate, is that they do not learn appropriateness from co-workers- they learn it from clients. Until the day a client tells her that she is out of line, she will continue to be who she isand so, I waited until she left the room to lean in and say:
"You'll have to forgive her. She means well but is a tad insensitive."
He snorted.
We got him up today. After a week where he spent alot of time in his bed, he wanted a change. He has a wonderful bed that inflates and deflates evenly in rotation so that his inability to move does not result in bedsores. With that bed, it is not necessary to reposition him unless he desires it. Once up in his modified wheelchair, only massive pillowing kept his head erect, as he is too weak even to hold his own head up. Each breath rasps and there is a faint gurgle. Every single respiration sounded like he was wrestling the angel of death for it. When I left the home I was thinking how nice it would be if he could have a wee nap by the fire and just sleep on into eternity.
Soon. Very very soon.
----*
"We would never learn to be brave and patient if there were only joy in the world."
--Helen Keller
Although we all see some of it, and most of do some of it, not all of us enjoy it. There are also those who the client does not enjoy having. The things my clients tell me would put the curl in or take it out of almost anyone's hair. Some days, I hear about circumstances and comments of the unfortunate nature and some days I hear it first hand. Today was such.
In the home of our magnificantly fierce gentleman, he of the indomitable spirit, things are not going well. There are some nasty complications this far down the end of life road. His strong heart and will keep beating in a body that is literally rotting from the inside out and it is a source of amazement that he fights on for every breath. This week is truly the end. He has not taken food for 2 weeks, and his breathing is laboured. He is gasping for air. He is choking on water which we administer with a syringe. He expresses himself in grunts and makes eye contact to show distain or amusement. He and I get along well. I try not to ask too many questions and keep my chatter lite.
My philosophy of care remains unchanged: do the job well, be mindful of the client's individual, maintain client dignity and then get the hell out of the way.
Each day as I enter this home over the holidays, a different co-workers face greets me. As he is a two person assignment, it is essential that at least one of the two is both trained and familiar with the client. I am that one. Today the other is a pleasant well-intentioned woman who has high skills. We rarely work together. She enters the bedroom, greets our client, bends down over the man in the bed and announces:
"Oh my GAWD- your eyes look awful. You look like you are going blind."
---then---:
"Happy New Year. Well, I guess it isn't a very happy one for you eh."
and so on.
My experience dealing with people who are inappropriate, is that they do not learn appropriateness from co-workers- they learn it from clients. Until the day a client tells her that she is out of line, she will continue to be who she isand so, I waited until she left the room to lean in and say:
"You'll have to forgive her. She means well but is a tad insensitive."
He snorted.
We got him up today. After a week where he spent alot of time in his bed, he wanted a change. He has a wonderful bed that inflates and deflates evenly in rotation so that his inability to move does not result in bedsores. With that bed, it is not necessary to reposition him unless he desires it. Once up in his modified wheelchair, only massive pillowing kept his head erect, as he is too weak even to hold his own head up. Each breath rasps and there is a faint gurgle. Every single respiration sounded like he was wrestling the angel of death for it. When I left the home I was thinking how nice it would be if he could have a wee nap by the fire and just sleep on into eternity.
Soon. Very very soon.
----*
"We would never learn to be brave and patient if there were only joy in the world."
--Helen Keller
Subscribe to:
Posts (Atom)
